My hope for this blog was to share what I have learned about progressive lung disease, and up until now that’s been fairly limited past the point of coping with grief and the impact on my mental health. I still feel it’s important to document this area as there will be so many people having to manage bereavement, but I also want to incorporate more about living with lung disease both as a patient and as a relative or Carer.
Each Monday I will continue the routine of documenting my personal life, see it as a diary if you will. However, on a Wednesday and Thursday I’ll be writing new posts that revolve around the world of lung disease, and not just IPF that I am well versed in but all lung diseases from COPD to Asthma, Bronchitis to Pneumonia, Mesothelioma and Cystic Fibrosis. Whether it will be an opinion piece, updates on news within the respiratory world or sharing things I learned as a Carer, it will hopefully shed some light on lung disease and be another injection of awareness to help people understand that more needs to be done.
If you want to talk more in depth with a bigger community of people then I highly recommend you sign up and get involved with the Pulmonary Fibrosis News Forum or get yourself on Social Media and follow the British Lung Foundation. Speaking of the BLF, they have launched an exciting new project whereby they want your opinions and evidence of living with lung disease. The Taskforce for Lung Health is hoping to push the UK Government to do more to improve services and care for our population who are living with a respiratory illness, and they want to be sure that everyone has the chance to highlight where they feel they could be better served by their local healthcare provider. If there’s anything I’ve learned through my own research, is that people who have been impacted with lung disease are passionate and driven individuals who will go above and beyond the call of duty to help bring improvement into how we view and treat pulmonary disease.
My first opinion piece went up yesterday and was a “little” rant let’s say at how hospitals are failing in improving No Smoking bans whilst my most recent diary from Monday was quite a personal and sensitive look at how bereavement has truly affected my mental health. Just to warn anyone, this may be quite triggering for those who struggle with mental health, self-harm and suicide so please be careful and perhaps avoid this week if you feel it may be harmful.
Next Wednesday and Thursday I’ll start looking at how respiratory disease affects the Winter Crisis and the unprecedented amount of news pieces that have flooded the community. I will also bring forward how you can cope if a loved one is admitted to A&E with a sudden deterioration in illness. If there’s anything else anyone wishes to ask or hear about, please don’t hesitate to pop something in the comments or alternatively get in touch directly with me at firstname.lastname@example.org